Short and sweet

For the past two days Jacob's secretions have been less thick. I honestly think it is the weirdest thing. We haven't changed his feedings, what he gets, and what we do. It is all the same but for some reason his secretions aren't as thick and dangerous. In part it may have to do with his trilogy (the ventilator) he's on at night but that still doesn't account for all of it. At least, I don't believe so. He's also not as unstable as he has been. When he throws a plug it only takes one cycle of the cough-assist (5 inhales and 5 exhales) to bring it up. Or, a little bit of suctioning. I thought he was getting in trouble last night but his heart rate didn't climb as fast and his oxygen saturation was steady at 100. He definitely had a lot of junk in his lungs but he responded more positively to it than oppose to Sunday. With that said, that doesn't mean that we can treat these plugs as less of a rush per say, but in essence we do have more time to act and it's also not as hard on his body.

As far as his site goes, there are no plans to do anything at this time. We have both surgeons conversing on what is best for the child and evidently they haven't come to a decision yet. The dressings have been wet but a new home care nurse just started this week who is very unfamiliar with what has to be done. Not wrapping the binder tight enough, keeping the phalange of the tube tight, the balloon inflated etc...that all factors in to the release of gastric secretions. Believe me, I'm not even seasoned on how to change this dressing. Respiratory wise I can handle anything with him and I'm very comfortable in what needs to be done. In an absolute emergency I could probably do it for a temporary amount of time but I'm no expert. It's quite complicated and there is a lot involved. Overall, there's not much more to say, we are in the middle of a waiting game. It's definite that no surgery will happen before mid August, that much I know. Nevertheless, both doctors have a plan. A few weeks ago, even a few months ago, there was no plan.