Monday, August 19, 2013

Bad news

I said that no news would be good news, so this news is not good news. I got a call from mom today about Jacob. We were doing so well with his site and the surgeons were so pleased that they were planning to put the mic-key button back in! In order for that to happen he needed to 'do well' for lack of a better term, with having his current tube clamped off. Every night for 4-6 hours he needed to tolerate the blocked access to the farrell valve bag. This would insure that his wound was healed enough to stop the flow of gastric secretions. However, I received the news today that doing that has put him right back to where we were at the beginning of the summer. My mom is having a difficult time stopping the secretions from reaching his skin...they are soaking through his dressing, the pad over his dressing, the sponge on that, the receiving blanket on top of that, and finally through his shirt. The last time this happened he went into surgery and they found that the secretions had reached the internal tissues. I'm kind of lost at this point; first day back to school, which is a break for me and I get this news. I'm not sure how to think right now but I can't help but wonder if my baby brother is ever going to get better. God has put us on a roller coaster for sure this summer; my family and I have expanded our faith and wisdom in more ways than I ever thought was possible. I live life in a new light and treasure every day. Yet through all of that, there is still a struggle. I'm nineteen, I don't have all of the answers, if any. My faith is concrete but I still deviate from the right path; I still question why Jacob isn't better yet.

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